EUROPAC – The European Registry of Hereditary Pancreatic Diseases

HealthcEUROPACLOGO.jpgare professionals can now refer people with a family history of pancreatic cancer to the European Registry of Hereditary Pancreatic Diseases (EUROPAC) for annual surveillance.

Around 10% of pancreatic cancers are caused by inherited risk factors. These can occur in families with a history of either pancreatic cancer or hereditary pancreatitis or in people who carry an at-risk genetic mutation.

NICE guidance (NG85) recommends pancreatic cancer surveillance for people with inherited high risk factors.

EUROPAC is a registry for families with histories of familial pancreatic cancer and hereditary pancreatitis. The EUROPAC study also runs surveillance programmes for people with high-risk factors.

The nearest surveillance centre for patients in the Peninsula Cancer Alliance is University Hospitals Plymouth NHS Trust.

On this page you will find:

  • information for healthcare professionals about EUROPAC including potential referral routes into the study for eligible patients
  • the patient referral form
  • an introduction to Beata Gubacsi, the EUROPAC surveillance navigator for the SSCA region
  • A guide to who should be referred onto EUROPAC
EUROPAC healthcare professional information leaflet
EUROPAC patient referral form
Who should be referred to EUROPAC?
Who should be referred to EUROPAC?

Patients who have:

  • Two or more First Degree Relatives with pancreatic cancer e.g. parent and grandparent, parent and sibling, parent and aunt/uncle etc.
  • Three or more cases of pancreatic cancer in the family
  • One or more cases of pancreatic cancer with an associated syndrome
  • Peutz-Jeghers syndrome
  • Two or more relatives with idiopathic pancreatitis
  • One case of idiopathic pancreatitis
  • Family history of pancreatitis and PRSS1

For a full list of referral criteria including genetic mutations and diagnosed genetic conditions, refer to the EUROPAC health professional information leaflet.

Self-referral to EUROPAC
Meet our region's EUROPAC surveillance navigator
Useful Links